Catherine had a difficult day yesterday as all the treatment hit her system. She felt quite fragile and her moods were really up and down (steroid). One minute she was crying and wanting to be cuddled, the next minute she was cheerful and bouncing around. Her hearing and sense of taste and smell are all heightened from the treatment, and she kept complaining that things are too loud or smell funny. She was also up a lot during the night, which we found happens because of the steroid treatment. She woke at 1.30am, 3am, 4am, 5am and then was awake in bed until 6am.
However, today she has been much better. She still looks really tired but is feeling much more cheerful and has just gone up the park to play with a friend. We are trying to make the most of this week as the treatment will hit her neutrophils by next week, meaning she is much more susceptible to infection.
Today she has been walking round the house with her pillowcase full of toys pretending to be Father Christmas. She is also getting excited about Christmas, especially when she found her 'socking' (stocking) and found out that she will get presents in it on Christmas Eve. She was also very excited today when we found the video of her first Christmas. She could tell that the baby was her, and thought it was funny that she couldn't talk or walk properly then. Catherine's grandad is coming to stay with us over Christmas, so she has also been excited that 'Grandfather' will be sleeping in the room next to her and that 'Father Christmas will also bring Grandfather some presents too'.
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1 comment:
still praying that the treatment will be successful and that catherine will not get any infections that will hinder her progress. also praying that you and mark will be given the strength to cope. may you all have a time of blessing at christmas and may you feel a sense of peace surrounding you.
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